Is EDS life-threatening?

    Last Updated: October 13, 2024

    Because of poor connective tissue integrity, people with EDS are at an increased risk of life-threatening complications, such as vascular and organ rupture, spontaneous pneumothorax (collapsed lung), and excessive bleeding. The risk of life-threatening complications is greatest among people with vascular and kyphoscoliotic EDS. However, people with other subtypes of EDS are still vulnerable to these complications and should take preventative measures, such as receiving regular medical care, monitoring symptoms, and avoiding strenuous contact sports.[1]

    References

    1. ^Malfait F, Castori M, Francomano CA, Giunta C, Kosho T, Byers PHThe Ehlers-Danlos syndromes.Nat Rev Dis Primers.(2020 Jul 30)